Deprecated: Creation of dynamic property ACF::$fields is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/advanced-custom-fields-pro/includes/fields.php on line 136

Deprecated: Creation of dynamic property ACF::$locations is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/advanced-custom-fields-pro/includes/locations.php on line 130

Deprecated: Creation of dynamic property ACF::$cache is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/advanced-custom-fields-pro/includes/cache.php on line 281

Deprecated: Creation of dynamic property ACF::$deprecated is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/advanced-custom-fields-pro/includes/deprecated.php on line 228

Deprecated: Creation of dynamic property ACF::$json is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/advanced-custom-fields-pro/includes/json.php on line 185

Deprecated: Creation of dynamic property ACF::$local is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/advanced-custom-fields-pro/includes/local.php on line 884

Deprecated: Creation of dynamic property acf_loop::$loops is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/advanced-custom-fields-pro/includes/loop.php on line 26

Deprecated: Creation of dynamic property ACF::$loop is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/advanced-custom-fields-pro/includes/loop.php on line 270

Deprecated: Creation of dynamic property ACF::$revisions is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/advanced-custom-fields-pro/includes/revisions.php on line 413

Deprecated: Creation of dynamic property acf_validation::$errors is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/advanced-custom-fields-pro/includes/validation.php on line 26

Deprecated: Creation of dynamic property ACF::$validation is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/advanced-custom-fields-pro/includes/validation.php on line 212

Deprecated: Creation of dynamic property acf_form_customizer::$preview_values is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/advanced-custom-fields-pro/includes/forms/form-customizer.php on line 26

Deprecated: Creation of dynamic property acf_form_customizer::$preview_fields is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/advanced-custom-fields-pro/includes/forms/form-customizer.php on line 27

Deprecated: Creation of dynamic property acf_form_customizer::$preview_errors is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/advanced-custom-fields-pro/includes/forms/form-customizer.php on line 28

Deprecated: Creation of dynamic property ACF::$form_front is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/advanced-custom-fields-pro/includes/forms/form-front.php on line 664

Deprecated: Creation of dynamic property acf_form_widget::$preview_values is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/advanced-custom-fields-pro/includes/forms/form-widget.php on line 34

Deprecated: Creation of dynamic property acf_form_widget::$preview_reference is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/advanced-custom-fields-pro/includes/forms/form-widget.php on line 35

Deprecated: Creation of dynamic property acf_form_widget::$preview_errors is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/advanced-custom-fields-pro/includes/forms/form-widget.php on line 36

Deprecated: Creation of dynamic property acf_field_oembed::$width is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/advanced-custom-fields-pro/includes/fields/class-acf-field-oembed.php on line 31

Deprecated: Creation of dynamic property acf_field_oembed::$height is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/advanced-custom-fields-pro/includes/fields/class-acf-field-oembed.php on line 32

Deprecated: Creation of dynamic property acf_field_google_map::$default_values is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/advanced-custom-fields-pro/includes/fields/class-acf-field-google-map.php on line 33

Deprecated: Creation of dynamic property acf_field__group::$have_rows is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/advanced-custom-fields-pro/includes/fields/class-acf-field-group.php on line 31

Deprecated: Creation of dynamic property acf_field_clone::$cloning is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/advanced-custom-fields-pro/pro/fields/class-acf-field-clone.php on line 34

Deprecated: Creation of dynamic property acf_field_clone::$have_rows is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/advanced-custom-fields-pro/pro/fields/class-acf-field-clone.php on line 35

Deprecated: Creation of dynamic property JSON_API::$query is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/json-api/singletons/api.php on line 6

Deprecated: Creation of dynamic property JSON_API::$introspector is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/json-api/singletons/api.php on line 7

Deprecated: Creation of dynamic property JSON_API::$response is deprecated in /nas/content/live/csfflowdev/wp-content/plugins/json-api/singletons/api.php on line 8
Chiari1000- A Self-Reported Illness Experience of Chiari Malformation for Adult Men and Adult Women – CSF Flow

Chiari1000- A Self-Reported Illness Experience of Chiari Malformation for Adult Men and Adult Women

Background

The present study aims to uncover differences in the illness experience of Chiari malformation I (CM) based on biological sex. With CM being far more prevalent in women and men, it is likely that the symptoms and illness experience would be different between the two groups. Recent papers have highlighted the self-reported illness experience using relatively large samples, see Fischbein et al., (2015) for review. The present study aims to gain a greater overall understanding of the illness experience from a physical, emotional, and cognitive perspective as well as obtain diagnostic and symptomatic information.

Methods

Participants completed the Chiari1000 online survey. This survey included information about the illness, illness experience and other measures of mental health and cognitive functioning. We estimate the survey took approximately 30 minutes to 1.5 hours depending on the complexity of disease. Data continues to be gathered on this platform, however the data used in this study was frozen on January 25th, 2018.

Results

Of our sample of 1,215 adults who completed the Chiari1000 survey, 82 were male (6.75%) and 1,133 were female (93.25%). These individuals were predominantly white with over 89% of individuals identifying at least partially as white. The average age at diagnosis with CM was 31 for females and 18 for males. Men had a higher rate of comormid syringomyelia, while women had a higher rate of comorbid Raynaud’s disease, Ehlers-Danlos Syndrome and migraine headaches. Women reported more severe physical symptoms which included higher amounts of pain in the neck, shoulder, upper back, leg, foot, and face. Women also reported more more cognitive issues and depression than men.

Discussion and Conclusions

While symptom presentation is alarmingly high for both groups, women report higher levels of pain. Future research may focus on why women are more likely to have a CM.